Friday, April 12, 2013

Chronically...Frustrated

It has been a LONG Fall and Winter for Madi. Bursitis in her hip; sprained knee; WEEKS of pain and crutches. Cough, sinus infection, "maybe" bronchitis... stomach issues, major headaches, dizzy spells. Fatigue, tears, and FRUSTRATION for both her and I. Being chronically injured and/or ill is simply NOT fun. To the people who don't believe her... or who "poo poo" her... or who count her out, leave her out and shut her out... I say SHAME on you. Riding in the KIA yesterday, I happened on an NPR radio interview with Laurie Edwards who was plugging her newly released book, "In the Kingdom of the Sick", and pulled over to listen intently. Everything she said hit home. WE ARE NOT ALONE. I have ordered both of her books, started following her blog and her FB page, and hope that her words give Madi some strength. Madi plugs on... still singing, dancing as she can and feeling "blue". I took her to visit dear friends in Georgia over Spring break and we stopped in Virginia on the way home to see my Aunt and Uncle... and cooking with Great Aunt Tina made her smile. We brought Grampa along and NOTHING makes Madi happier than time with him... her BEST friend. I am thankful for Pittsburgh. For Joanne Londino and Dr. Vincent Deeney and their continued partnership in this medical battle. For their belief that the physical causes a mental attitude-- and NOT the opposite. Fight on... Fighting on...